Patient Resources

The MUSC Movement Disorders team is pleased to share resources for patients and their families dealing with Parkinson's Disease and other neurological conditions.

• Books & Literature
• South Carolina patient and family resources
• National and international patient and family resources
• Web-based resources
• Resources for providers
• Clinical trials resources
  
• Podcasts

Books & Literature:

• A Primer on Parkinson’s Disease: Download the book
• Parkinson's Disease in South Carolina Report
• Books related to Parkinson's Disease

Resources in South Carolina:

• Parkinson's Disease Support Groups
• Shepherd’s Centers
• Lifelong Learning Institutes
• Community Long Term Care
• Councils on Aging
• Adult Day Care Centers
• Agencies on Aging
• Family Caregiver Support Services
• Respite Programs

National and International Resources:

• National Parkinson Foundation
• National Geriatric Education Centers
• American Parkinson's Disease Association
• Parkinson's Disease Foundation
• WorldParkinson's Disease Association
• Essential Tremor Foundation
• Foundation for PSP/CBD and Related Brain Diseases
• Huntington’s Disease Society of America  

Resources on the Internet:

• Dystonia Medical Research Foundation
• CurePSP - foundation for PSP CBD and related brain diseases
• IETF -International Essential Tremor Foundation
• Healingwell.com - general information and articles on Parkinson's disease
• MedLine Plus - a service from the U.S. National Library of Medicine and National Institutes of Health
• Neurology Channel - general information and video about Parkinson's disease
• WE MOVE - Worldwide Education and Awareness to Movement Disorders
• Parkinson's Action Network - political advocacy organization dedicated to Parkinson's disease
• Michael J. Fox Foundation- is dedicated to ensuring the development of a cure for Parkinson's disease within this lifetime through an aggressively funded research agenda.
• Parkinson Pipeline Project - grassroots organization of people with Parkinson's disease
• World Parkinson's Congress - a nonprofit organization dedicated to providing an international forum for the best scientific discoveries, medical practices and caregiver initiatives related to Parkinson's disease.

Specific to professionals:

• Neuroland.com - clinical neurology information for professionals

Resources about Clinical Trials:

• Clinical Trials - general Web site about current clinical trials
• Center Watch - clinical trials listing service
• Trials Center - online source for clinical trials information
• PDtrials.org - Web site that helps people easily find and understand Parkinson's disease clinical trials